Active Status
When the individual and his/her family are actively partnering with the
regional center on plans, decisions and choices regarding provision of services and
supports to meet desired outcomes.
Advocate
A person who supports and represents the rights and interests of another
individual in order to ensure the individual's full legal rights and access to services.
The advocate can be a friend, relative, Case Manager, or any other interested
person.
Age-Appropriate
Consideration of the chronological age of the person in the use of activities,
instructional locations, and techniques.
Autism/Autistic Disorder
Autism/Autistic Disorder has the essential features of markedly abnormal or
impaired development in social interaction and communication and a markedly restricted
repertoire of activity and interests. Manifestations
of the disorder vary greatly depending on the developmental level and chronological age of
the individual. It must be manifest prior to
the age of 3 years.
Case Manager (also referred to as Social Worker)
Person assigned as the primary contact and partner at the regional center once
eligibility has been determined. The Case Manager is a professional in the area of
developmental disabilities and is knowledgeable about counseling, resources, supports and
other services.
Cerebral Palsy
Cerebral Palsy is a condition which results in a disorder of movement and
posture resulting from a non-progressive lesion of the brain acquired during development.
'Cerebral" refers to the brain, and "Palsy" to paralysis. It can be mild in
nature or very debilitating depending on the severity. Common manifestations may include
spastic rigidity of the limbs, disorders of posture and movement, speech articulation
difficulties, lack of muscle tone, poor coordination, poor balance, unusual gait. It is
not communicable. Education, therapy and the use of assistive technology can help persons
with cerebral palsy lead productive lives.
Circle of Support
Informal and reliable group of people who meet and communicate regularly to
offer support, in a way appropriate to the consumer for whose benefit it exists.
Client Development Evaluation Report (CDER)
An assessment instrument administered to each consumer at intake to determine
developmental and functional status. Thereafter, the CDER is reviewed and revised at the
IPP meeting.
Community Integration
Presence, participation and interaction in the consumer's natural
environments.
Consumer
Person who is eligible for regional center services. Sometimes referred to as a
client or customer.
Developmental Delay
A significant difference between an infant's or toddler's current level of
functioning and the expected level of functioning and development for his/her
chronological age in one or more of the following developmental areas:
Developmental Disability
According to the California Welfare and Institutions Code Section 4512 a
developmental disability means a disability which originates before an individual attains
age 18, continues or can be expected to continue indefinitely, and constitutes a
substantial handicap for that individual. Included in this definition are mental
retardation, cerebral palsy, epilepsy and autism. Also included are disabling conditions
found to be closely related to mental retardation or to require treatment similar to that
required for individuals with mental retardation.
Emergency Response System
Response system used after business hours to reach an emergency on-call worker
within 30 minutes once a caller contacts Golden Gate Regional Center's after hours
response pager system and leaves their telephone number.
Empowerment
To gain the knowledge, information and skills necessary to take responsibility
for one's own decisions and choices, empowering an individual to have as much control as
possible over his/her life and future.
Entitlement
Persons with developmental disabilities (consumers) and their families have the
right to receive services and supports which will enable them to make decisions and
choices about how, and with whom, they want to live their lives; achieve the highest
self-sufficiency possible; and lead productive, independent and satisfying lives as part
of the community in which they live.
Established Risk
An established risk condition exists when an infant or toddler is diagnosed
with a condition which has a high probability of resulting in developmental delay,
although that delay may not be evident at the time of diagnosis.
Functional Skills
Skills which enable an individual to communicate and interact with others, and
to perform tasks which have practical use and meaning at home, in the community or on the
job.
Generic Agencies
Any agency which has legal responsibility to serve all members of the general
public and which is receiving public funds for providing such services.
Generic Services or Supports
Services and supports provided by public agencies. For example, medical
services through Medi-Cal, educational services through the Public School District,
vocational and job placement services through the Department of Rehabilitation, and
disability benefits through Social Security. Other generic supports in the community are
voluntary service organizations, commercial businesses, non-profit agencies, and similar
entities in the community whose services and products are regularly available to members
of the general public.
Goal
A general statement of purpose that defines the end result of a program's
impact upon an individual. A goal describes the behavior or skills that a consumer is to
acquire usually within a three-to-five year period.
High Risk
High risk for developmental disability exists when an infant or a toddler has a
history of a combination of biomedical risk factors such as low birth weight, prematurity,
severe respiratory distress, or seizure activity during the first weeks of life.
Inactive Status
When a consumer or family requests that they no longer need or want direct or
purchased services from the regional center, their status becomes inactive. Status may be
reactivated by contacting the regional center serving the area where you live in
California.
Individual Educational Plan (IEP)
A program established for individuals who are eligible for special education
services, prepared by an individualized education program team which determines services
to be provided under the mandates of the IEP.
Individual Family Service Plan (IFSP)
A written statement which lists goals and specific objectives in areas
important to the family of a child birth to three years of age. Each objective contains a
target date that the objective is to be met, and one or more plans designed to reach the
objective. The IFSP is coordinated by the Case Manager.
Individual Program Plan (IPP)
A planning document that is developed for each consumer which specifies the
desired outcomes he/she is trying to achieve. The IPP also specifies the steps and actions
that will be taken to try to reach a desired outcome, and lists any needed supports and
services. The IPP is developed through a process of individualized needs determination and
embodies an approach centered on the person and family.
Interdisciplinary Team
A group of persons who have individual areas of professional expertise and/or
know the consumer and his/her skills and behavior.
Long-Term Goals
Desired outcomes that take at least five years to accomplish and require new
skills, certain choices, and certain steps along the way in order to achieve them.
Mental Retardation
Mental retardation has the essential feature of significantly subaverage
intellectual functioning that is accompanied by significant limitations in adaptive
functioning in at least two of the following skill areas: communication, self-care, home
living, social/interpersonal skills, work, leisure, health and safety. The onset must
occur prior to the age of 18 years of age.
Natural Environment
Places and social contexts commonly used by individuals without developmental
disabilities. Examples of natural environments include the neighborhood school, the local
child care center, social activities sponsored by Boy and Girl Scouts, YMCA/YWCA, Parks
and Recreation, and activities sponsored through religious organizations.
Natural Support
Support and assistance that naturally flows from the associations and
relationships typically developed in natural environments such as the family and
community. Examples of natural supports are extended family and friends.
Objectives
Steps taken to move towards a goal. A completion date should be indicated so that everyone
involved in the planning will know if the objective is being met or not.
Partnership
When two or more people share common goals and agree to work together to
achieve them.
Person-Centered Planning
The way in which the planning team works together to figure out where you want
to go (goals), how you want to get there (objectives) and what kinds of support you need
to get there. Person-centered planning means focusing on your needs, strengths and
capabilities, and helping you to have an independent, productive and satisfying
life.
Purchase of Service Funds
Funds identified in the Budget Act of the regional center system for the
purpose of purchasing services provided by vendors for consumers.
Self-Advocacy
Awareness, motivation and ability of an individual to represent and communicate
his or her own interest, to exercise personal choice, to exert control over his or her own
environment, and to avoid exploitation and abuse.
Service Catchment Area
Geographical area within which a regional center provides services specified in
its contract with the Department of Developmental Services.
Service Coordination
Locating and coordinating support, information and service choices for a
consumer and the family to feel secure, knowledgeable, responsible and empowered.
Social Worker
See Case Manager
Short-Term Objectives
Steps and actions outlined in the Individual Program Plan to achieve desired
outcomes in the future. Objectives are usually time-limited and stated in terms that allow
you to measure your progress in achieving them.
Social Security Administration (SSA)
Federal agency which administers benefits
to retired or disabled workers and their surviving dependents.
Stakeholder
All members of the community consumers, families, providers of services and supports,
local and state agencies, Golden Gate Regional Center Board of Directors and staff.
Supplemental Security Income (SSI)
A program that pays monthly benefits to people with low incomes and limited
assets who are 65 or older, blind, or have a disability. Children can qualify if they meet
Social Security's definition of disability and if their income and assets fall within the
eligibility limits.
Substantial Handicap
Condition which results in major impairment of cognitive and/or social
functioning. Moreover, a substantial handicap represents a condition of sufficient
impairment to require interdisciplinary planning and coordination of special or generic
services to assist the individual in achieving maximum potential.
Vendor
A provider of services who has applied for and received a vendor identification
number from the regional center. Regional centers may only purchase services from
community agencies, programs and professionals who have completed this vendor
process.
Voucher
A written authorization issued by a regional center to a family member or a
consumer to procure the service for which the voucher is issued and which specifies the
maximum reimbursement authorized by the regional center.
Voucher Program
Direct reimbursement to families for arranging respite care services and
transportation.