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Parents: What about the impact of all this on my
family?
Parenting in general is challenging, and having a child with developmental disabilities
can add to this challenge. Even though you may have suspected all along that something was
different about your child, when you find out that your child has a disability, your first
reaction may be one of disbelief. Many things go through your mind. What is next? How do I
do the best that I can to help my child be all he or she can be?
Be prepared for other family members (spouse, brothers, sisters, cousins) who may not
understand or be able to accept your child's disability. Acknowledge their concern, get
them information, include them in your circle of support and let them know how much you
need them. And realize that change may come slowly.
The following are some tips and suggestions from experienced parents who have children
with disabilities and have found techniques that help them.
Information
 | Find out all you can about the resources available in your community for your child and
family. |
| Use the Family Resource Center's HelpLine to gain information and support regarding your
child's disability. |
| Use the Family Resource Center's library for books, videos or other resources, or look
into your local public library. |
| Go to workshops, parent groups or topic-oriented meetings in the community. |
| Keep accurate records; set up a system that works for you or use the one at the back of
this guide.
Write down your questions, and remember that all questions are important. |
| Learn about the laws that protect people with disabilities. |
Support
| Peer support ask to speak to other parents or family members who have "been
there." |
| Identify your support system: family, friends, church, community. |
| Join a support group that meets your needs. There are support groups for siblings, dads,
computer access, inclusion and specific disabilities. |
| Take time for yourself. |
| Keep your expectations high and set challenging goals for your child. |
| Professionals are available to assist in promoting your child's development, but
remember, you know your child best. |
| You are your child's best advocate. Become an equal partner in your family member's
programs. |
| NEVER GIVE UP HOPE! |
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